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United Mitochondrial Disease Foundation

April 23 - May 06

Our Mission: To promote research and education for the diagnosis, treatment, and cure of mitochondrial disorders and to provide support to affected individuals and families.

Patients and families are our focus!

When a patient or parent first hears the phrase ‘I suspect mitochondrial disease’, UMDF is usually the next call they make or their first website visit.

In fact, on a yearly basis, UMDF answers and helps more than 4,000 people navigate their mitochondrial journey with phone support. Emails seeking support and resources are countless.

Bottom line – UMDF is ready to help.

UMDF supports newly diagnosed patients with critical information on treatment and care.

Our vast online viewing library provides countless topics on living with mitochondrial disease.

When a patient or family member calls or emails the UMDF, we try to answer questions quickly.
If there is a question we are unable to answer, we’ll help you get the information you need.

If your doctor needs information, we will point him or her to an expert in the mitochondrial medicine field for answers.

And of course, we are here to listen in difficult times.

UMDF connects patients to each other. UMDF Ambassadors across the nation provide patients and families with support in their state or region.
We also connect at UMDF Family Support Meetings and our National Symposium. This symposium is the only mitochondrial medicine meeting where patients, clinicians and scientists are able to network and interact.

We are building the ‘Roadmap to a Cure’  for the entire community— but we need the help of all patients, families, and cargivers to have an impact on treatments and cures.

How can UMDF help and support you today?
Connect now or call us at 888-317-UMDF (8633) today. Stay in touch with the latest information and newsletters.

We are here to serve the entire patient community now!

Scientific Research
Since UMDF’s start in 1996, nearly $12 million in grants have been awarded to support the research that scientists believe could lead to a faster and painless diagnosis,  treatments and potential cures for mitochondrial disease.

Our community ‘Roadmap to a Cure’ is our focus for the years ahead.

We invite you to click here to view our research progress from 1996 through today.

Clinician/Scientific Education
“There are not enough doctors who know about mitochondrial disease”. It’s a common phrase we hear too frequently.

UMDF works to educate clinicians and allied health members about mitochondrial disease and its impact on other diseases and human health.

We do this through our educational sessions at leading medical meetings, and on the grassroots level.
UMDF’s Symposium devotes time to a multi-day platform for the scientific and medical community so that they may learn about the disease and how to help patients.

For patients, UMDF is spearheading an effort to collaborate on the next generation of treatments for patients through the development of a Mito Care Network.

In addition to funding research, UMDF offers scientists an important overview of mitochondrial disease and the latest discoveries and information on our website.

None of this would be possible without the generous donations from patients and families, or funds raised  through participation in Energy for Life WalksFamily Research Funds, and other outstanding events.

It is the job of our entire community to raise the level of awareness when it comes to mitochondrial disease.

UMDF actively works to raise the profile of mitochondrial disease and dysfunction through traditional and social media.   Story placement in print and broadcast media last year alone resulted in over 500 stories in which UMDF, its patients and families, scientists, and clinicans were mentioned.
This resulted in nearly 400,000 new visits to the UMDF website where the number one page viewed was “What is Mitochondrial Disease”.  

Through your state and federal advocacy efforts, mitochondrial disease and UMDF is a recognized partner on Capitol Hill.

But more needs to be done. You can help by joining us in active participation during ‘Awareness Week’.  You can help us get media coverage to spread awareness. We must continually raise our profile so the phrase “Mito What?” becomes a phrase of the past.

We’ve made tremendous progress in educating the federal government about mitochondrial disease.

More than a decade ago, UMDF asked the government to report the amount of dollars it was investing in mitochondrial medicine research. Sadly, that dollar amount was far too low.

Since that time, we’ve introduced legislation, completed four ‘Day’s on the Hill’ and now have the attention of the National Institutes of Health (NIH).

Because of the hard work by our patients and families, UMDF was able to secure appropriations language in the Department of Defense budget, allocating more than $11 million dollars in scientific research towards treatments and cures!

But, our community needs to continue this work by participating in advocacy, supporting the UMDF created Congressional Mitochondrial Disease Caucus ,and by working on thestatewide level to address the needs of our entire mitochondrial disease community.
www.umdf.org
  • Artist

    Liam

    11 yrs old

  • Artist

    Rachel

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    Timmy

    12 yrs old

  • Artist

    Emily & Alex

  • Artist

    Paper Clouds

Liam Schanzenbach is 11 years old and lives near Washington, D.C. with his parents, sister, and pet cat Flo. He loves to draw, collect and read comic books, build Legos, read and watch sci-fi, play video games, listen to endless episodes of “Adventures in Odyssey”, attend concerts, hike on the Appalachian Trail with his dad, and listen to rock music. Liam’s favorite bands are Skillet and Thousand Foot Krutch (TFK), both of whom he’s gotten to see perform live at Liberty University’s Winterfest. He aspires to one day play electric guitar just like them! Liam has gotten to be a student at one of Virginia’s first public charter schools for 4th and 5th grades, where his art teacher has really helped him grow his drawing skills. His mother has Mitochondrial Myopathy, and when he’s not busy with school or playing with friends, Liam helps her with her household tasks by sharing his own high energy and growing muscles!

Rachel Schanzenbach has Mitochondrial Myopathy and drew the inspiration for her design from her happy childhood growing up in the 1980s in our nation’s colorful Sonora Desert. Prior to college Rachel was homeschooled K-12 and in appreciation for how it benefited her own health and education, now highly recommends a trial of homeschooling for any child with delicate health. Rachel moved to Virginia in 2000, where she met and married her college sweetheart Daniel. They and their two children, now ages 14 and 11, have a great time learning and having fun and adventure at the UMDF Symposium when it’s in nearby Washington, D.C. Rachel’s inspiration for her quote “Be the difference, Share your energy” comes from the many Christians who’ve donated their physical help to her family during the hardest years of her progressing disease. Together they have shown her that when it comes to Mitochondrial Disease, anyone ready to share their energy can make a world of difference!

Timmy is a fun, energetic, and hilarious 12 year old who loves art, gardening, and any activity where he is outdoors. He has a diagnosis of autism spectrum disorder, as well as functional mitochondrial disorder. He loves school and adores social outings with family and friends. He is well known in our community for making people laugh.

Alex MacLellan loves to draw in his spare time and was inspired by his sister-in-law Emily Jurek to enter a design for this competition with UMDF. Like the girl in his drawing, Emily has Mitochondrial Disease and is a superhero because she uses her Mito Muscles every day, inspiring all those around her.

Any time you purchase a Paper Clouds Logo design, 50% of the proceeds go directly to the charity of that campaign!!


Throwback vs. Cancer

April 09 - April 22

You asked for it and Paper Clouds has done it again! We have brought together three cancer battling causes this campaign! Read on for more info about each one :)

Ronan Thompson Foundation

Ronan Thompson was a bright, energetic little boy that always kept his family smiling and laughing. In August of 2010, he was diagnosed with a stage IV Neuroblastoma and fought valiantly or the next 10 months. Ronan's battle with Neuroblastoma ended on May 9, 2011, but his fight will go on. Ronan continues to inspire his family in the way he lived his life full of passion, strength, and courage. He will live forever in their hearts and minds as the most beautiful little boy to ever have touched the earth. The Ronan Thompson Foundation raises funds for research that will find new and innovative ways to treat neuroblastoma, and ultimately, find a cure for this disease. The Foundation wants to create a World Class Neuroblastoma Research and Care Center and we're thrilled to help by contributing 50% of the proceeds from this campaign to this cause.

St Baldrick's Foundation

If you've never heard about St. Baldrick's, let us fill you in! This organization raises money for kids cancer research. Kids who are diagnosed with cancer have to be treated differently than adults with the disease. No child should ever have to face cancer and we are so happy to do our part in helping raise funds to help find the cure! To learn more about our incredible cause, visit www.stbaldricks.org.

Arizona Cancer Foundation for Children

Arizona Cancer Foundation for Children (ACFC) is a 501(c)(3) nonprofit foundation created to support Arizona children diagnosed with cancer and their families. The organization spotlights the need to significantly increase clinical research and treatment options for children suffering from cancer. Through a partnership with the Ronald A. Matrciaria Institute of Molecular Medicine at Phoenix Children’s Hospital, ACFC supports developing cancer treatments and therapies that specifically combat pediatric cancer. Chrisie and her husband, Nick Funari, started the foundation after Chrisie’s 5-year-old daughter, Ava, passed away from a three year struggle with Stage Four Neuroblastoma; an aggressive form of pediatric cancer.

Fly Brave Foundation

Our last cause is the Fly Brave Foundation. Their mission is to create an employment training program for adults with autism that have aged out of the school system, focusing on three essential building blocks; hands on skills training within the community, social skills, and healthy living. On May 21st & 22nd the Morton Golf Foundation is hosting their Golf & Guitars Music Festival and all the proceeds from this amazing initiative will go to the Fly Brave Foundation. You can find details about the golf tournament and the musicians playing this year's festival at www.golfandguitars.com
  • Artist

    Maya

  • Artist

    Eli

    9 yrs old

  • Artist

    Donna

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    Demitri

    19 yrs old

Maya is Ronan's mother and she contributed two incredible quotes that remind her of her son. She was generous to share the story behind each of these special sayings with us. All good things are wild and free is my favorite quote by Henry David Thoreau. It stands for everything that Ronan was in his short little life and it is something I try to carry on for him in my life here. I try to live as wild and freely as possible knowing that tomorrow is never guaranteed. Everyday we are here is a gift and should not be wasted. "You keep me safe, I'll keep you wild" is another one of my favorite quotes. In my heart, I'm keeping Ronan safe forever. In turn, he is reminding me to keep going, to keep knocking down doors, and to keep fighting cancer for kids the non conventional wild way that he would want me to.

Eli lost his little sister Ava to cancer when she was almost 5 and he was 6. Eli and Ava were best friends. Ava was diagnosed with Stage 4 Neuroblastoma, an aggressive form of pediatric cancer, when she was just 1.5 years old. Eli was by Ava's side for all of her treatment - never giving her special treatment and always treating her just like any other little sister. Eli and Ava both wanted to make sure that no other kids ever get cancer and if they did get cancer they wanted to make sure that they would get better fast. Chrisie Funari, Eli and Ava's mom, started the 501(c)(3) non profit organization Arizona Cancer Foundation for Children after Ava passed away to stay true to her children's wishes and help cure children with cancer right here in Arizona. Eli is Co-President of the Arizona Cancer Foundation for Children children's program, Ava's Angels; a unique program where kids can help kids with cancer. Eli created both of the designs that benefit Arizona Cancer Foundation for Children for the next two weeks!!

The art in this campaign was created by Donna. Donna was born on July 20, 2005 and was diagnosed with an aggressive brain tumor - papillary meningioma when she was 19 months old. Over the next 31 months Donna underwent four relapses, four neurosurgeries, chemotherapy, a stem cell transplant, and twelve weeks of proton beam radiation treatment. In the face of everything, this little lady was an absolute joy throughout her life. She loved to dance. Her favorite color was black. She had an incredibly silly side and she was sharp as a tack. She had a different outlook on life than those around her and she often shared her point of view. Her greatest wish was to go to school and she was able to do so in her last two months. Despite spending much of her childhood in hospitals or around doctors, Donna lived with grace and joy. She inspired everyone around her to experience the moment, feel grateful, take a deep breath, and live their lives more meaningfully. Donna's mom, Sheila runs the blog Mary Tyler Mom and the Donna's Good Things Facebook page where she raises money to fight childhood cancer and shares her experiences as a mother. RIP, Donna, we’ll meet you there.  Donna Lubell Quirke Hornik, 20 July 2005 – 19 October 2009.

Dimitri (19) was diagnosed with autism at the age of 18 months and since then he's had an intense home program of teaching 3-4 hours a day, Monday through Friday. He's a student at Luther Burbank High School in their special education department. Despite limited verbal skills he's good at communicating what he wants- particularly if it's pizza or his iPad.


CFC International

March 26 - April 08

The mission of CFC (Cardio-Facio-Cutaneous Syndrome) International is to improve the quality of life through family support, research, and education. Their goals are:
  • To provide support as needed by people affected by CFC syndrome through outreach, education and information sharing.
  • To ensure that physicians have ready access to the latest information to enable accurate diagnosis and proper symptom treatment.
  • To maintain a registry of CFC individuals.
  • To foster and facilitate research on CFC syndrome including development of appropriate treatments.
  • To maintain a broad base of funds needed to accomplish our mission and goals.
  • To provide sustainability of the organization through continuity and growth.
  • To support a collaborative relationship among the conditions of the RAS pathway.
cfcsyndrome.org
  • Artist

    Wyatt

  • Artist

    Paper Clouds

Wyatt was born with a rare genetic disorder name Cardio Facial Cutaneous Syndrome (CFC) It took 7 years and a very detailed and expensive genetics test to find out about it.
Cardio-Facial-Cutaneous syndrome is a rare genetic condition that typically affects the heart (cardio-), facial features (facio-) and skin (cutaneous).  There are approximately 400 cases identified through genetic testing, but the exact incidence of CFC is likely much higher than that.
Other than the primary issues, there are many other issues that can occur including very low muscle tone, sensory processing disorder (SPD), Autism Spectrum Disorder (ASD), seizures, GI tract issues, eye and vision problems, balance and coordination deficiency, growth issues cognitive impairment, and others.
There is no known cure, but due to the various manifestations, CFC patients require various forms of therapy, hospitalizations and care services o improve the health of children with CFC syndrome.
Your donations will help CFC International to fulfill their mission: to improve the quality of life through family support, research, and education.

Any time you purchase a Paper Clouds Logo design, 50% of the proceeds go directly to the charity of that campaign!!


EFFI & Coastal Connections

March 12 - March 25

Educational Foundation for Independence
"The mission of Educational Foundation for Independence (EFFI) is to provide scholarships in the form of tuition assistance for students to attend K-12 private schools and college support programs for alternative learners. Our scholarship philosophy is to strengthen and sustain individuals within unique educational environments in order to expand upon their core abilities and to assist them in reaching their fullest potential. As such, we develop thoughtful, long-term collaborations with individuals and educational institutions, and invest sufficient funds to accomplish the purpose at hand and achieve meaningful and lasting results."

Coastal Connections
"We focus on the abilities of students, individuals served and staff, honoring their uniqueness and individuality. We offer creative and flexible program development and design that is responsive to needs of stakeholders through partnerships and collaborations. Our expectation is to seek and assume leadership roles in every aspect of our organization. We live, work, learn and play in the community and our presence in our community is mutually beneficial. We take reasonable risks that are of benefit to individuals and the organization."
  • Artist

    Sean

    22 yrs old

  • Artist

    Ryan

    7 yrs old

  • Artist

    Paper Clouds

This is Sean Bowler. Sean is a twenty-two-year-old young man. Sean loves his family and friends. He shows his appreciation for those that care for him every day.
Sean was born at twenty-seven weeks. As he grew, Sean was not meeting his milestones. It was clear that he would need special education services. During his younger years, we were trying to find a diagnosis for Sean in hopes of better understanding his needs, development, and challenges. At six-years-old, Sean was diagnosed with FG Syndrome. With this diagnosis, our family started to make connections with other families with the same diagnosis. Sean’s geneticist at the time was not fully convinced with the diagnosis and after some time we started another search for a diagnosis. In the spring of 2016, Sean was diagnosed with Xia-Gibbs syndrome through genetic testing. At the time of his diagnosis, Sean was the fifth person with a confirmed diagnosed through genetic testing and the twentieth person overall.
As of his twenty-second birthday, Sean began attending an adult day program at Coastal Connections in Amesbury, Massachusetts. This program serves special needs adults of all ages and abilities. Sean refers to Coastal Connections as his “work.” This wonderful program provides academic and vocational opportunities for clients. Over time, Sean will have the opportunity work out in the community.
At home, Sean has his family. He is the older brother of two sisters whom he adores, Abby and Kelsey. Sean gave himself the nickname, Superman. To his family this seems very appropriate. Sean has recently had his third spinal fusion surgery. Currently, Sean is recuperating from this surgery and anxiously awaits his return to work. Feel free to follow us at https://www.facebook.com/Theboysmb/

Ryan is 7 years old and was diagnosed with autism and Sensory Processing Disorder when he was 4. He is an avid Lego builder and incredible artist with an endless imagination and a heart of gold. Ryan is a very sweet boy, who loves all creatures big and small, always going out of his way to make sure that his friends and family are happy. He is very excited about this opportunity to partner with Paper Clouds Apparel to raise funds for Educational Foundation for Independence and help improve the quality of life for those who have even greater needs than his own.

Any time you purchase a Paper Clouds Logo design, 50% of the proceeds go directly to the charity of that campaign!!


PCA Poets Party

February 26 - March 11

Banding Together SD
"Founded in 2009, Banding Together’s mission is to bring music opportunities to individuals with special needs in our community. This is accomplished through key objectives that include providing: music therapy scholarships, free Jam Session programs, mentorships, and instruments. To date, we have awarded 79 music therapy and adapted music lessons scholarships totaling $48,140. Since 2012, we have reached 158 individuals aged 13-24 in our Jam Session program, 56% who have autism. Unfortunately music-making experiences may not be available to individuals with special needs such as autism due to lack of financial resources. Often after age 22 the number of supported social and recreational services are very few. According to the California Department of Education, in 2010 there were approximately 57,273 individuals with special needs in San Diego County. Of that total, 23,544 are within are range of our programs."

Pitt Academy
"Pitt Academy is fully accredited by the Kentucky Non-Public Schools Commission, Inc. We are an independent Catholic K-12 Archdiocesan school with a non-denominational enrollment policy. We see our students as individuals with a unique pattern of strengths, learning styles and challenges. We focus on a child’s abilities, not his or her disabilities. The environment at Pitt Academy gives students every opportunity to reach their own academic, social and creative potential in a learning environment that meets the needs and abilities of each student.
Our individualized program, adapted curriculum, outstanding instructors and vibrant community are committed to helping our students develop the skills and self-confidence necessary to lead independent and fulfilling lives."

Special Olympics Missouri
"Our Mission is to provide year-round sports training and athletic competition in a variety of Olympic-type sports for children and adults with intellectual disabilities, giving them continuing opportunities to develop physical fitness, demonstrate courage, experience joy, and participate in a sharing of gifts, skills and friendship with their families, other Special Olympics athletes, and the community."

Friendship Circle
"Friendship Circle provides assistance and support to 3,000 individuals with special needs and their families by providing recreational, social, educational and vocational programming. In addition to helping those in need, the Friendship Circle enriches its vast network of volunteers by enabling them to reap the rewards of selfless giving. Friendship Circle also provides support to individuals and families struggling with isolation, addiction and other family-related crises.
Friendship Circle creates friendship in the lives of individuals with special needs and those facing isolation while providing an opportunity to become a contributing member of the community. Through our programming, Friendship Circle aims to promote an inclusive community that values all individuals regardless of the challenges they face."

Beyond Austim, Inc.
"As parents to children with autism, we learned rather quickly that we had to be strong advocates for our children; we had to be their voice. What we have always believed as parents is that our children deserve what every child deserves: a safe and loving place in which they can express themselves freely as individuals.
Throughout this journey we have also found some amazingly talented and compassionate professionals that share our vision. Day in and day out, our team members strive to impact our children’s lives with an abundance of knowledge and an endless supply of compassion.
Our commitment is to our students, their families and our team members. We are driven to ensure that Beyond Autism grows smartly with an exceptional work ethic and high energy that will ensure its longevity."
  • Artist

    Simi Fromen

  • Artist

    Marisa B. Crane

  • Artist

    J.R. Rogue

  • Artist

    Kat Savage

  • Artist

    Tyler White

Simi Fromen is a writer and poet. When she was a young child, she wrote poetry and stories as an exploration of the arts and to unleash her creativity. Many years later, she picked up the pen again finding healing and her voice through words. Her work has been featured in online magazines. Her love and passion for spilling ink have gained her a devoted online following. Her first book Ascending Voice is now out and available on Amazon in the link below. She is currently working on her next inspirational book and novel. - working with Friendship Circle

Author. Lover. Thinker. Welcome to the island of misfit toys. INFP. Empath. Be soft. Trying to help others any way that I can. Probably eating cheese. - working with Banding Together

Jen Rogue first put pen to paper at the age of fifteen after developing an unrequited High School crush, and has never stopped writing about heartache. She published her debut novel April 2016 and has one published poetry book. Her third publication, Tell Me Where It Hurts, will release July 2016.
When not frolicking in the world of words she is devouring sushi, bossing her cat around, and buying new pairs of converse. - working with Special Olympics Missouri

Louisville, KY. Writer. Choke on me or fall in love with me. Nothing else is acceptable. - working with the Pitt Academy

Hi everyone.

I am an aspiring author from Arizona. I don't believe my talent warrants me to call myself a writer just yet, but I am trying, not just for myself, but for everyone that has supported me along the way. My words are for you. - working with Beyond Autism


CCF & NADF, Part II

February 12 - February 25

The mission of the Crohn's & Colitis Foundation is to cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults affected by these diseases. Crohn's disease and ulcerative colitis are collectively known as inflammatory bowel diseases (IBD).
The Foundation sponsors basic and clinical research of the highest quality. We also offer a wide range of educational programs for patients and healthcare professionals, while providing supportive services to help people cope with these chronic intestinal diseases. These programs are supported solely through our donors, grants, fundraising efforts, and sponsors.

The National Adrenal Diseases Foundation informs, educates, and supports those with adrenal disease and their families to improve their quality of life. They aim to stop death from undiagnosed Addison’s disease, to improve life quality of those who suffer from adrenal disease, and to promote the study of adrenal disease to improve treatment and find cures.
  • Artist

    Jill

  • Artist

    Ashlee

  • Artist

    Paper Clouds

Jill has been battling Crohn's for a long time and was actually at her doctor for a visit due to her Crohn's when she saw our new project and created two amazing designs for us to help the world find out about this awful disease.

Born and raised in Arizona Ashlee Miller has been in the beauty makeup industry for 14 years and Real Estate industry for 11 years. She loves makeup and marketing; with her entrepreneurial spirit she launched Ashlee Miller Artistry in 2010. After experiencing heart ship & a potentially life threatening disease called Addison’s, she persevered. Ashlee made the leap and opened up a bridal boutiques and salon in early 2016. Ashlee calls herself a Mompreneur, she is a proud single mommy of 3 amazing little boys who absolutely rock her work, when she is not “ Mommin” she fills her spare time with her passion in the world of beauty and makeup. This extroverted introvert is an avid member of the community giving back to what’s close to her heart researching & creating awareness for Addison’s. She expressed combining her passions together is extremely rewarding and fills her cup. When she is not working, she loves a getaway with her boys to some beach somewhere and entertaining her friends with her hidden hula hoop skills.

Any time you purchase a Paper Clouds Logo design, 50% of the proceeds go directly to the charity of that campaign!!


CCF & NADF

January 29 - February 11

The mission of the Crohn's & Colitis Foundation is to cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults affected by these diseases. Crohn's disease and ulcerative colitis are collectively known as inflammatory bowel diseases (IBD).
The Foundation sponsors basic and clinical research of the highest quality. We also offer a wide range of educational programs for patients and healthcare professionals, while providing supportive services to help people cope with these chronic intestinal diseases. These programs are supported solely through our donors, grants, fundraising efforts, and sponsors.

The National Adrenal Diseases Foundation informs, educates, and supports those with adrenal disease and their families to improve their quality of life. They aim to stop death from undiagnosed Addison’s disease, to improve life quality of those who suffer from adrenal disease, and to promote the study of adrenal disease to improve treatment and find cures.
  • Artist

    Ashlee

  • Artist

    Gina

    48 yrs old

  • Artist

    Danny Page

    39 yrs old

  • Artist

    Paper Clouds

Born and raised in Arizona Ashlee Miller has been in the beauty makeup industry for 14 years and Real Estate industry for 11 years. She loves makeup and marketing; with her entrepreneurial spirit she launched Ashlee Miller Artistry in 2010. After experiencing heart ship & a potentially life threatening disease called Addison’s, she persevered. Ashlee made the leap and opened up a bridal boutiques and salon in early 2016. Ashlee calls herself a Mompreneur, she is a proud single mommy of 3 amazing little boys who absolutely rock her work, when she is not “ Mommin” she fills her spare time with her passion in the world of beauty and makeup. This extroverted introvert is an avid member of the community giving back to what’s close to her heart researching & creating awareness for Addison’s. She expressed combining her passions together is extremely rewarding and fills her cup. When she is not working, she loves a getaway with her boys to some beach somewhere and entertaining her friends with her hidden hula hoop skills.

My name is Gina Stinnett, I’m 48 , wife to ex Mlb player, Kelly Stinnett, and a full time mother to 4 amazing boys ! I have witnessed first hand the struggles of Inflammatory Bowel Disease with my Father living with Crohn’s disease for 50 plus years and myself being diagnosed with Ulcerative colitis 25 years ago. This disease is life altering!! I am very passionate about supporting the work of CCFA and finding cures !!

My name is Danny Page and I believe our health and fitness is the only aspect of our life that we truly have control of. When I was 5 years old, it was Dec 24th, 1984 – Christmas Eve and I stayed home from Xmas Mass with my sister. She was teaching me how to use a calculator and had a blue ice pack on her head. It was moments later she began screaming out in dire pain, she had a brain aneurism and by the time my folks got home, it was to late.

This was my first exposure to health and how important it was in my life. Like anyone who experiences a traumatic event in their life, my parents and family let their health decay out of guilt and mourning, but I chose the opposite path and focused on health, exercise and nutrition throughout my school career, graduating with degrees in exercise science, nutrition and attaining the best certifications money could buy.

I thought I was living the dream life till late June of 2017. I began experiencing deathly pains in my abdomen, weight loss, lethargy and this feeling like I was going to die. I was able to drive myself to the Mayo Clinic and they checked me into the ER. I was there for about 9 hours and they ran some tests and said unfortunately your insurance does not work here and you need to see a GI specialist, so they released me and I barely made it home. I tried to sleep that night but couldn’t and the next morning I got on my computer and researched who the best hospital was that would take my insurance and also provide the support I needed. I packed a bag and drove half awake to the ER and a few hours later I was in hospital bed.

The next 4 days were miserable. I couldn’t eat and I was being put through test after test after test and finally they were able to diagnose me with C-Diff and Ulcerative Colitis. My insides were so bloody and blown up they could barely see much on the tests, but they finally affirmed that’s what I had. I was scheduled to have my colon taken out not much longer until a Dr from the U of A came to see me. He offered a medication that was new and that he had great results with but it would cost me $2000.00 a day and was not covered by my insurance. I needed to take it for 11 days but he guaranteed me it would work. Low and behold it did and 11 days later I was released from the hospital and had lost a total of 51 lbs in those 11 days. I could barely stand up and speak but I was alive and grateful.

My road to recovery has been a challenging one but one I took to heart. It all began with proper nutritional support, probiotics, and easing back into exercise. Lot’s of rest and keeping stress to a minimum and spending as much time as I could with my wife and daughter and animals. Chrons and colitis disease are the silent killers, they hit us when we least expect it and I firmly believe there are many out there suffering from these auto-immune diseases that just haven’t been diagnosed yet. Knowledge is power as is a good support ground around you, so the more we speak up the better.

Any time you purchase a Paper Clouds Logo design, 50% of the proceeds go directly to the charity of that campaign!!


Loganisms For Logan!

January 15 - January 28

Logan Fans (aren't we all)!!! Loganisms are back! You asked for them and Paper Clouds listened. Every item you purchase this campaign will not only get you some super sweet Loganisms all over your closet but also 50% of the proceeds go directly to help this young man. If you're not already following their journey, we suggest following The Crumb Diaries today :D
  • Artist

    Logan

    21 yrs old

Logan is a 21-year-old young man who is living with Hashimoto's and developmental disabilities, including Apraxia. He enjoys riding his trike, bowling, fishing, playing basketball and helping with his many, many animals. His family likes to consider him challenged not limited, and you can find out more about him through Logan's mom, Allyson, chronicles their lives on her Facebook page, The Crumb Diaries.
Logan's designs are raising money for Logan's Fund, a trust fund set up to be set aside for Logan should anything happen to his parents.    


CCS 2018 Kick Off

January 01 - January 14

As a 501(c)3, Cloud Covered Streets is focused on helping the homeless survive the streets on a one-on-one basis. Every time you support CCS, they hand deliver a fresh shirt, socks, & a toiletry kit to someone who is in need. The company was founded by Robert Thornton in Phoenix, AZ but has started to expand to Austin, TX as well as San Diego, CA. With goals to stretch countrywide, Cloud Covered Streets needs help from people like you every day!
http://cloudcoveredstreets.org/
  • Artist

    Daniel

  • Artist

    Alan

  • Artist

    Lee

  • Artist

    Dan

  • Artist

    Troy

Daniel is the reason I decided to focus a lot more energy on Cloud Covered Streets and help more of the homeless. The second person I ever met on a street mission to help the homeless. After giving Daniel a new shirt, and letter of hope, Daniel put his head in his hands and began to cry. He then told me that everything he owned had been stolen a week ago and he didn't even have a t-shirt, until I gave him one. That moment changed my life, and I hope Daniel is doing ok.

Alan is a young man we have become very good friends with. Alan had a job as a home appraiser for a bank, owned a home, and two trucks, but the responsibilities of life he noticed were making him feel like he was going crazy. Alan says that giving that up and being homeless is much worse on him physically, but he feels much better mentally.

Lee has been off and on the streets since he was fifteen. At the age of ten, his father, a World Champion wrestler committed suicide, and his mother, also a professional wrestler, was abusive to Lee so he left home. Lee is a Shaman and takes pride in being able to help heal others. One of the sweetest people we have met and always so grateful of the help we give him.

Dan was proud to tell us he was celebrating six months of being drug-free when we met him. His girlfriend is in rehab and he is excited for her to get out and for the both of them to work on building a life together. Dan was very positive about life and we were very happy to meet this young man.

Troy is very soft spoken, but is always so happy to see us. A gentle giant is the best way to describe Troy. Troy is always looking out for his friends on the street and never wants more than he needs.


PCA Classics

December 18 - December 31

Some things are timeless: a bottle of Coca-cola, a '57 Corvette, & the Empire State Building just to name a few. The Classics section of Paper Clouds is devoted to helping our artists to continue to leave their mark on the world while helping their favorite non-profit. As always, 50% of the proceeds of every shirt purchased goes directly to the cause that the artist has chosen. Now the best part is up to you! Do a little shopping and help spread the word about these timeless designs, finally here to stay!
  • Artist

    Julia

    13 yrs old

  • Artist

    Caleb

    9 yrs old

  • Artist

    Jackson

    7 yrs old

  • Artist

    Logan

    21 yrs old

  • Artist

    Emma

    11 yrs old

  • Artist

    Noah

    13 yrs old

  • Artist

    Jonah

    11 yrs old

  • Artist

    Chloe

    25 yrs old

  • Artist

    Nick

    16 yrs old

  • Artist

    Regan

    10 yrs old

  • Artist

    Zoe

    11 yrs old

  • Artist

    Grace

    15 yrs old

  • Artist

    Bronson

    14 yrs old

  • Artist

    Brooke

    14 yrs old

Julia is 13 years old and lives in Madison, Wisconsin. She was born in China and joined her family when she was 5 and a half. Julia had a hard life in China and when she came home she received diagnoses of PDD-NOS, ADHD and Reactive Attachment Disorder. School work is challenging for Julia and she works very hard with her wonderful teachers. Julia started drawing just before her seventh birthday. She loves to draw, paint, color and work with clay. She also loves dinosaurs, everything about Harry Potter and playing the cello.
Julia is excited to be working with Paper Cloud to help raise money for Madison Ice Inc's Adaptive Skating Program and to see her dancing dinosaurs on shirts and hats!

Caleb is 9 years old and loves to play outside, chop wood, and go fishing.  He loves to draw dragons and is excited that one of his dragons is part of this campaign for Tubie Friends.  Caleb was born prematurely and has on-going stomach and intestinal issues that require him to be tube fed.  He experiences a lot of pain in his abdomen when he eats and recently was able to change his feeds to J-feeds which bypass his stomach entirely and greatly improved his overall quality of life. 
He is a happy, energetic boy who loves to create things with his hands and play and we are thrilled to use Caleb's dragon design to help raise funds for Tubie Friends!

Jackson is 7 years old and lives in Manvel, TX with Mommy, Daddy and little sister Bella.  He was born with Down syndrome but hasn't let that slow him down one bit. He's even a little bit of a celebrity, due to being featured in stories on Huffington Post, CBS News, and The Mighty. Jackson is in Kindergarten and is loved by his teachers and classmates. He loves to read books, watch Paw Patrol, play sports, swim and draw with chalk. Jackson's favorite band is The Ramones, and he insists on blasting to Blitzkrieg Bop (at full volume) every day on the way to school.
Jackson's design will be helping out Reece's Rainbow which is an organization that helps orphans with Down Syndrome find loving families :)

Logan is a 21-year-old young man who is living with Hashimoto's and developmental disabilities, including Apraxia. He enjoys riding his trike, bowling, fishing, playing basketball and helping with his many, many animals. His family likes to consider him challenged not limited, and you can find out more about him through Logan's mom, Allyson, chronicles their lives on her Facebook page, The Crumb Diaries.
Logan's designs are raising money for Logan's Fund, a trust fund set up to be set aside for Logan should anything happen to his parents.    

Emma is a very happy 11 yr. old who loves life. She was born at 27 weeks and weighed 2 lbs. 14 oz. She developed a brain bleed at birth and this caused her to have Cerebral Palsy. She spent 72 days in the NICU and it was during her stay in the NICU when we realized how tough she would be. She was diagnosed with Cerebral Palsy one week before her first birthday.
Emma began physical therapy during her first year of life and she started school at the age of 18 months. The teachers and professionals along the way have helped Emma develop a positive attitude and have given her a life without limitations. She loves going to school so she can see her friends and has always been very social. During Kindergarten, Emma explained to her class why she was in a wheelchair and uses a walker. One of the kids asked, “What is Cerebral Palsy?” Emma answered, “When I was born, I got a boo-boo on my brain.” Emma has not let CP get in the way of her dreams. She has always wanted to dance and walk by herself.
On June 6th, 2013 Emma had spinal surgery to help her reach her dream of walking. Emma took this surgery on with a smile and has undergone extensive physical therapy. She has made amazing progress and can now take up to 3 independent steps! She currently goes to physical therapy 3 times a week and continues to persevere. She has inspired many and we are very proud of what she has accomplished in such a short time. Emma recently had an assignment at school and was to give advice to a baby on their first day here on earth. This is what she wrote, "Some days you will pass the test. Some days you will get the answers wrong. Some days you will reach your dreams. Some days you will lose your grip. It's just how it is here. Enjoy your new life!" She is a beautiful, caring, and bright young lady. You can follow Emma's amazing journey on her Facebook page!!
Every parent has hopes and dreams for their child, just as every child has hopes and dreams for themselves and their futures. Emma’s Cupcake design will help parents and their young adults with special needs progress toward their hopes and dreams through participation in the numerous educational, social and career development opportunities available in the District's post-secondary program. In Dublin, Ohio, the staff of the postsecondary programs is providing amazing, high-quality, outcome-focused opportunities to individuals between the age of 18 and 22 who require individualized transition programming and supports. Please Support the #DublinDifference Project!!

Noah created the Guitar drawing when 13 and lives in Middletown, Maryland. Noah has a LOT of friends that have been by his side since he started school. He loves baseball and is a big hitter on the Challenger Baseball Team and is known as "The Possum". He has had the opportunity to play on the field with some of the Orioles players numerous times and has many autographs. He also loves swimming and has participated in Special Olympic Swimming for the past 3 years where he has gotten numerous Gold, and Silver medals. He loves drawing, and his specialty is drawing animals and family pictures. He loves to play PlayStation games and he is unbeatable in any game he plays!!! He also loves fishing with his dad and his sisters. He loves animals and has 2 dogs and 14 cats. His favorite thing is playing practical jokes on his family, he makes us laugh every day!!!
Noah's design is raising money for the International Down Syndrome Coalition, an international group of parent advocates that are not affiliated with any political party or religion. They believe that all life is precious and deserves dignity and respect. They are pro Down syndrome and always stand on the side of the person with Down syndrome.

Jonah is a wonder. He is 11 years old, a twin, loves Doctor Who, science, can read at a high school level, and despite the odds: walk, talk (very well;), and yes draw an awesome looking ninja! He also has autism, seizures, GI issues, hypotonia, hypoglycemia, fine motor ataxia, heat and exercise intolerance among other health issues. All this is from Mitochondrial Disease. He fought hard to accomplish what he can do now and keeps fighting hard to keep his skills and gain more!
Jonah is continuing to raise funds for the United Mitochondrial Disease Foundation!

Chloe is 25 years old and has autism. She is on a mission to advocate about what autism is like from her perspective in order to teach others. Chloe presents at conferences, writes, and more. In her free time Chloe loves to color and participate in Agility Angels, dog training for kids and young adults with Autism.
Chloe created the Sunshine design and 50% of the proceeds from sales of her design will benefit Agility Angels!

Nick was an incredible, inspiring young man who showed thousands of people what it was like to truly live life to the fullest. At 14, Nick was diagnosed with Osteosarcoma after complaining of pain above his knee for a few weeks. Over the next two years, Nick underwent many surgeries and battled through chemotherapy with a positive, determined attitude every step of the way. Unfortunately, the tumors were continuing to grow and in late summer of 2014, Nick and his family made the decision to stop treatment. Through the next few months, Nick crossed items off of his bucket list with fervor and spent his days with his loved ones bringing smiles to the face of all those he touched. On December 30th, 2014 Nick passed away.
Half of the proceeds from apparel sold with his tattoo in this campaign will benefit the homeless and help the memory of Nick live on! People will continue to get Nick'd!

Regan born 11.13.03 and was diagnosed with autism at 2 years of age when we lived in Belvidere, Illinois. We moved to Beloit, Wisconsin in September of 2006. Regan is 10 years old now and is in the 4th grade. He loves Legos, Superheroes, Annoying Orange, and other YouTube funnies. Regan loves to draw using black ink pens, markers, and crayons and he also enjoys using the paint program on the computer to draw pictures like this Hulk.
Regan's Hulk will benefit the National Autism Association!!

Zoey is an 11 yr old with Asperger's syndrome when she created this amazing Owl art. Zoey said that Owls are her favorite animal to draw and she has drawn that animal the most.

Grace is a caring and vibrant 15-year-old girl. The middle of 3 sisters, Grace loves reading, swimming, traveling with her family, being with animals, and singing along to musicals, especially WICKED. Her ability to find silver linings in every situation is a source of inspiration for all who love her.
In 2007, at age 5, Grace was diagnosed with medulloblastoma, a fast-growing tumor in her cerebellum. She underwent surgery, proton beam therapy, and chemotherapy, and is now a 10-year survivor. Despite the many challenging side effects of treatment, she is thriving and loving life.
Grace has enjoyed being a 2014 St. Baldrick’s Ambassador and the proceeds from her design will go directly to St Baldrick's. She looks forward to turning 15 in January, to someday meeting Orlando Bloom and Idina Menzel, and to traveling to New Zealand. She was inspired by her new favorite TV show – Once Upon A Time -to create this heart design. She traced the design, burned it into wood, and painted it red.

Bronson is 14 and going to High School this year. He loves to draw, write cartoon stories, go to Disneyland and California Adventure, the beach, do Crossfit and he loves to travel. Bronson loves Spongebob Squarepants he is a collector of anything Spongebob. He is growing into his role as “little brother” and it he is starting to give his brother and cousins a run for their money with his newfound attitude. Bronson wants to help the homeless and has chosen Cloud Covered Streets for his cause!

Brooke is a fourteen-year-old rising high school freshman. She is generous, affectionate, funny as all get out, and, as you can see, a talented and prolific artist. She is also autistic and lives with epilepsy. While she takes pride in being autistic and sees her autism as an integral part of what makes her the incredible kid that she is, she'd really like her seizures to take a hike. She's very happy to be sharing her artwork with you and hopes you like it.
Brooke's design is aiding to the funding of The Epilepsy Foundation, a non-profit national foundation, headquartered in Landover, Maryland, dedicated to the welfare of people with epilepsy and seizure disorders.